With more than 10 years of experience, Fiona Rose Murphey Foundation Charitable Trust functions in favor of children with Osteogenesis Imperfecta and similar conditions.
Thanks to the success of our Trail Ride last year we have been able to help Ryker Curtis, a two year old red headed little boy who was born with over 18 fractures, with expenses relating to his surgery last December. Ryker lives in Nashville, TN and has had particular problems with his humeri (arm bones) fractuing them about every two weeks since September 2013. He will get both his right humerus and right tibia rodded in Omaha, NE and we are so happy to be able to help him with the expenses related to this surgery.
Another child with O.I. that we have also helped with pamidronate infusion "out of pocket" expense is Jacob Becerra from The Woodlands, TX. Jacob is 4.
Yet another child that we have helped is Noah Ortiz, a nine month baby shown in the picture wearing a helmet that the Foundation has purchased for him. Noah lives in Beeville, Tx and has O.I. Type III the same type as Fiona. Children with O.I. spend so much time in the first couple of years on their backs that their heads tend to flatten and this helmet will help protect and shape his head.
We are also happy to announce that we are partnering with the Center for Courageous Kids in Scottsville, KY, a medical camp for children with chronic or life threatening illnesses. In November, 2015 they are having an O.I. weekend camp for O.I. children and their families. We are creating a "Fiona Fuel Fund" which will help families travel to the camp. The actual camp is free for the children and their families.