Extending Your Hand the Nonprofit Way
Share:

Call: (855) 437-6350
110 Waterford Lane, Georgetown, TX 78628-6905
 
     
 
 
 
 
 
 


 

Nonprofit Organization in Georgetown, Texas

LOIS MARIE MURPHEY July 21, 1921 - May 31, 2016

   One of our founding Trustees and Board Member since 2003 passed away on May 31, 2016 - she was 94.   She was the loving wife of Pink L. Murphey who passed away in 2005 and the mother of Michael and Mark, grandmother to Ryan, Brennan, Laura, Maurya and Erin and greatgrandmother to Fiona and Elle, Habib and Revel.

   Lois loved people and especially her family - she was happiest when surrounded by children and grandchildren.    Not only family passed through her house but an array of visitors, musicians and strangers -  all were welcome.   Lois fed and made everyone feel at home.   Lois' faith was strong and she is now resting in the Lord's place with her beloved husband.

In lieu of flowers Lois requested that donations be made to the Fiona Rose Murphey Foundation either by check mailed to:

110 Waterford Lane

Georgetown, TX 78628

or by credit card by going to the Contact Us Page and clicking on the

donate button

 

 
Fiona Rose Murphey, Nonprofit Organization in Georgetown, TX

The Fiona Rose Murphey Foundation Charitable Trust helps children with bone diseases and other debilitating conditions and is a non profit 501 (c) (3) organization based in Georgetown, Texas.

 
Osteogenesis Imperfecta (OI) (Brittle Bone Disease)

Characterized by breaking of bones easily and frequently, often for little or no apparent reason, Osteogenesis Imperfecta is caused by imperfectly formed bone collagen, which is the major protein of the bones' connective tissue.

 

The condition is a genetic disorder that affects about one in every 20,000 children born in the U.S. each year, and usually affects the long bones in arms and legs.

With four different degrees of severity of OI existing in patients, some of the milder cases are often misdiagnosed as child abuse cases and some more severe cases do not allow the infant to survive. The majority of patients are affected with moderate OI, which presents itself with evidence of broken bones in utero, at birth, and shortly thereafter.

About Us

With more than 10 years of experience, Fiona Rose Murphey Foundation Charitable Trust functions in favor of children with Osteogenesis Imperfecta and similar conditions.

Thanks to the success of our Trail Ride last year we have been able to help Ryker Curtis, a two year old red headed little boy who was born with over 18 fractures, with expenses relating to his   surgery last December.   Ryker lives in Nashville, TN and has had particular problems with his humeri (arm bones) fractuing them about every two weeks since September 2013.   He will get both his right humerus and right tibia rodded in Omaha, NE and we are so happy to be able to help him with the expenses related to this surgery.

Another child with O.I. that we have also helped with pamidronate infusion "out of pocket" expense is Jacob Becerra from The Woodlands, TX.   Jacob is 4.  

Yet another child that we have helped is Noah Ortiz, a nine month baby shown in the picture wearing a helmet that the Foundation has purchased for him.   Noah lives in Beeville, Tx and has O.I. Type III the same type as Fiona.   Children with O.I. spend so much time in the first couple of years on their backs that their heads tend to flatten and this helmet will help protect and shape his head.

We are also happy to announce that we are partnering with the Center for Courageous Kids in Scottsville, KY, a medical camp for children with chronic or life threatening illnesses.   In November, 2015 they are having an O.I. weekend camp for O.I. children and their families.   We are creating a "Fiona Fuel Fund" which will help families travel to the camp.   The actual camp is free for the children and their families.

 



Contact us at (855) 437-6350 in Georgetown, Texas, and find out how you can contribute to our nonprofit organization.

Call for Hours | Providing Services in Nashville, Tennessee

TO DONATE: Send check to: Fiona Rose Murphey Foundation Charitable Trust, 110 Waterford Lane, Georgetown, TX 78628

<form action="https://www.paypal.com/cgi-bin/webscr" method="post">
<input type="hidden" name="cmd" value="_s-xclick">
<input type="hidden" name="hosted_button_id" value="PYMKZXGVWTXKU">
<input type="image" src="https://www.paypalobjects.com/en_US/i/btn/btn_donateCC_LG.gif" border="0" name="submit" alt="PayPal - The safer, easier way to pay online!">
<img alt="" border="0" src="https://www.paypalobjects.com/en_US/i/scr/pixel.gif" width="1" height="1">
</form>