With more than 10 years of experience, Fiona Rose Murphey Foundation Charitable Trust functions in favor of children with Osteogenesis Imperfecta and similar conditions.
Thanks to the success of our fundraising we have been able to help Ryker Curtis, a young red headed boy who was born with over 18 fractures, with expenses relating to his surgery. Ryker lives in Nashville, TN and has had particular problems with his humeri (arm bones) fractuing them about every two weeks since September 2013. He will get both his right humerus and right tibia rodded in Omaha, NE and we are so happy to be able to help him with the expenses related to this surgery.
Another child with O.I. that we have also helped with pamidronate infusion "out of pocket" expense is Jacob Becerra from The Woodlands, TX.
Yet another child that we have helped is Noah Ortiz, a nine month baby shown in the picture wearing a helmet that the Foundation has purchased for him. Noah lives in Beeville, Tx and has O.I. Type III the same type as Fiona. Children with O.I. spend so much time in the first couple of years on their backs that their heads tend to flatten and this helmet will help protect and shape his head.
We have partnered with the Center for Courageous Kids in Scottsville, KY, a medical camp for children with chronic or life threatening illnesses. In November, 2015 they held an O.I. weekend camp for O.I. children and their families. We created a "Fiona Fuel Fund" which helped families travel to the camp. The actual camp is free for the children and their families to attend. We hope to continue this partnership in the future.
In addition to helping children with O.I. we have also provided assitance to a teenager who underwent a heart transplant and several autistic children so they can have access to and be able to afford learning devices.
See our services page for inquiries on acquiring assistence for your family.