Extending Your Hand the Nonprofit Way
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Call: (855) 437-6350
110 Waterford Lane, Georgetown, TX 78628-6905
 
     
 
 
 
 
 
 
We are really excited to announce that the 4th Annual Benefit for the Foundation will be held in Lake City Colorado on Friday, September 14, 2018 - all the money raised at the last Benefit has gone to help children with O.I.     
4th Annual Benefit

Little Girl In a Wheel Little Red Head Boy in a Wheel Chair Boy in a wheel chair

 
Here are some of the children that we have helped this year

Little Girl Sitting In A Chair Baby Girl in Wheel Chair

               

                 

This year also the Fiona Rose Murphey Foundation partnered with the High Hopes Development Center In Franklin, Tennessee.   The mission of the Center is to equip children, youth and families with the skills necessary to achieve success though education, therapeutic services and support.   All families have special needs or chronic diseases and they offer two integrated programs, an inclusive pre-school and a pediatric therapy clinic.

 


Fiona Rose Murphey, Nonprofit Organization in Georgetown, TX

The Fiona Rose Murphey Foundation Charitable Trust helps children with bone diseases and other debilitating conditions and is a non profit 501 (c) (3) organization based in Georgetown, Texas.

 
Osteogenesis Imperfecta (OI) (Brittle Bone Disease)

Characterized by breaking of bones easily and frequently, often for little or no apparent reason, Osteogenesis Imperfecta is caused by imperfectly formed bone collagen, which is the major protein of the bones' connective tissue.

 

The condition is a genetic disorder that affects about one in every 20,000 children born in the U.S. each year, and usually affects the long bones in arms and legs.

With four different degrees of severity of OI existing in patients, some of the milder cases are often misdiagnosed as child abuse cases and some more severe cases do not allow the infant to survive. The majority of patients are affected with moderate OI, which presents itself with evidence of broken bones in utero, at birth, and shortly thereafter.

About Us

With more than 10 years of experience, Fiona Rose Murphey Foundation Charitable Trust functions in favor of children with Osteogenesis Imperfecta and similar conditions.

Thanks to the success of our fundraising we have been able to help Ryker Curtis, a young red headed boy who was born with over 18 fractures, with expenses relating to his surgery. Ryker lives in Nashville, TN and has had particular problems with his humeri (arm bones) fractuing them about every two weeks since September 2013.   He will get both his right humerus and right tibia rodded in Omaha, NE and we are so happy to be able to help him with the expenses related to this surgery.

Another child with O.I. that we have also helped with pamidronate infusion "out of pocket" expense is Jacob Becerra from The Woodlands, TX.    

Yet another child that we have helped is Noah Ortiz, a nine month baby shown in the picture wearing a helmet that the Foundation has purchased for him.   Noah lives in Beeville, Tx and has O.I. Type III the same type as Fiona.   Children with O.I. spend so much time in the first couple of years on their backs that their heads tend to flatten and this helmet will help protect and shape his head.

We have partnered with the Center for Courageous Kids in Scottsville, KY, a medical camp for children with chronic or life threatening illnesses. In November, 2015 they held an O.I. weekend camp for O.I. children and their families.   We created a "Fiona Fuel Fund" which helped families travel to the camp.   The actual camp is free for the children and their families to attend. We hope to continue this partnership in the future. 

In addition to helping children with O.I. we have also provided assitance to a teenager who underwent a heart transplant and several autistic children so they can have access to and be able to afford learning devices.

See our services page for inquiries on acquiring assistence for your family. 

 



Contact us at (855) 437-6350 in Georgetown, Texas, and find out how you can contribute to our nonprofit organization.

Call for Hours | Providing Services in Nashville, Tennessee

TO DONATE: Send check to: Fiona Rose Murphey Foundation Charitable Trust, 110 Waterford Lane, Georgetown, TX 78628

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