Extending Your Hand the Nonprofit Way
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Call: (855) 437-6350
110 Waterford Lane, Georgetown, TX 78628-6905
 
     
 
 
 
 
 
 


 

Nonprofit Organization in Georgetown, Texas

About a month ago we donated money for an ipad to a little boy who was born with Downs Syndrome and then at age six was diagnosed with autism.    The only way James communicates is with an ipad and his ipad was broken and he was badly in need of a new one.   Although the Fiona Rose Murphey Foundation usually helps children with O.I. in the last year we have branched out to help one child with money towards a heart transplant and some other children with similar diseases to O.I.   James need was great so we gave him an ipad.   His story about his experience with a very helpful Apple employee went viral on Facebook with over 2 million hits and 20,000 shares - made the local news stations and newspapers in Nashville and People.com wrote a wonderful story about his experience. The link to this story is http://www.people.com/article/moms-note-to-apple-store-employee-goes-viral .

Consquently there will be a fund raiser on March 11, see flyer above, to raise money for kids with autism to get ipads.   After this story broke the Foundation received numerous requests from autistic children and hopefully through this benefit we will be able to grant some of these requests.   All the money that the Foundation receives from this benefit will go to autistic children.

More Details on the Rendezvous 2016 Page

Once again we want to welcome Capitol Area Quarter Horse Association as a Major Sponsor
Fiona Rose Murphey, Nonprofit Organization in Georgetown, TX

The Fiona Rose Murphey Foundation Charitable Trust helps children with bone diseases and other debilitating conditions and is a non profit 501 (c) (3) organization based in Georgetown, Texas.

 
Osteogenesis Imperfecta (OI) (Brittle Bone Disease)

Characterized by breaking of bones easily and frequently, often for little or no apparent reason, Osteogenesis Imperfecta is caused by imperfectly formed bone collagen, which is the major protein of the bones' connective tissue.

 

The condition is a genetic disorder that affects about one in every 20,000 children born in the U.S. each year, and usually affects the long bones in arms and legs.

With four different degrees of severity of OI existing in patients, some of the milder cases are often misdiagnosed as child abuse cases and some more severe cases do not allow the infant to survive. The majority of patients are affected with moderate OI, which presents itself with evidence of broken bones in utero, at birth, and shortly thereafter.

About Us

With more than 10 years of experience, Fiona Rose Murphey Foundation Charitable Trust functions in favor of children with Osteogenesis Imperfecta and similar conditions.

Thanks to the success of our Trail Ride last year we have been able to help Ryker Curtis, a two year old red headed little boy who was born with over 18 fractures, with expenses relating to his   surgery last December.   Ryker lives in Nashville, TN and has had particular problems with his humeri (arm bones) fractuing them about every two weeks since September 2013.   He will get both his right humerus and right tibia rodded in Omaha, NE and we are so happy to be able to help him with the expenses related to this surgery.

Another child with O.I. that we have also helped with pamidronate infusion "out of pocket" expense is Jacob Becerra from The Woodlands, TX.   Jacob is 4.  

Yet another child that we have helped is Noah Ortiz, a nine month baby shown in the picture wearing a helmet that the Foundation has purchased for him.   Noah lives in Beeville, Tx and has O.I. Type III the same type as Fiona.   Children with O.I. spend so much time in the first couple of years on their backs that their heads tend to flatten and this helmet will help protect and shape his head.

We are also happy to announce that we are partnering with the Center for Courageous Kids in Scottsville, KY, a medical camp for children with chronic or life threatening illnesses.   In November, 2015 they are having an O.I. weekend camp for O.I. children and their families.   We are creating a "Fiona Fuel Fund" which will help families travel to the camp.   The actual camp is free for the children and their families.

 



Contact us at (855) 437-6350 in Georgetown, Texas, and find out how you can contribute to our nonprofit organization.

Call for Hours | Providing Services in Nashville, Tennessee

TO DONATE: Send check to: Fiona Rose Murphey Foundation Charitable Trust, 110 Waterford Lane, Georgetown, TX 78628

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